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In this session from our February 2024 Summit, experts from CRDSA and TransCelerate Biopharma discussed how to navigate the complex data protection governance process, and how existing resources like TransCelerate’s methodology can help companies efficiently enable data privacy while improving secondary use.

This whitepaper updates CRDSA’s 2022 systematic review of data contributor policies and data protection methodologies. This update includes information published by 35 biopharma sponsors. Highlights include:

• The review now covers 35 biopharma sponsors, a 20% increase from 2022.
• The consistency of dataset- and documentation-sharing policy commitments establish a reference benchmark for all data contributing organizations.
• Challenges remain in the areas of data transformation transparency and data protection methodology.