This public workshop, co-convened by the Duke-Margolis Institute for Health Policy and the FDA Rare Disease Innovation Hub, is designed for all stakeholders in the rare disease community to explore data sharing. The agenda includes an opening panel with Vivli CEO, Rebecca Li and C-Path CEO Klaus Romero exploring key data sharing players and components, and Aaron Mann joins the “next steps” closing panel.

This event will be hosted in person at the National Press Club and Virtually via Zoom.

Register and More Info at: https://healthpolicy.duke.edu/events/rise-together-data-sharing-across-rare-disease-ecosystem